Video
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Web-based
The Nicholas Effect
Videotapes
"Patches of Love", The National Donor Family Quilt
Video
"The National
Donor Family Quilt continues to grow. It has travelled to over 50 national
and local gatherings, and, at every venue, it makes an impact on health care
professionals, families, transplant recipients and the general public. The squares
visually tell the story of individual donors. Together, they represent the giving,
altruistic spirit of organ and tissue donation - the threads that bring us together.
Now, that message is told in a touching video about the Quilt. Donor families
share their precious memories about their loved ones and about making their
squares. Three recipients, whose lives have been ever-changed by the gift of
donation, express their gratitude. This 8-minute video is great for increasing
awareness about donation at public and professional presentations, at events
where the Quilt will be displayed, and for your own personal library. Services
for producing this video were donated by the North Jersey Chapter of the International
Television Association." For more information, contact:
National Donor Family Council
c/o National Kidney Foundation (http://www.kidney.org)
30 E. 33rd Street
New York, NY 10016
800/622-9010
The Nicholas Effect
Nicholas Green was killed by car bandits in Italy in October of 1994 (see Nicholas'
memorial web page). "The Nicholas Effect" is a beautiful video about Nicholas'
life and death, and the amazing results of his parents' decision to donate Nicholas'
organs and tissues. Please see The
Nicholas Effect web page on TransWeb for more information, a Real Audio slide
show version of the video, and how to get your own copy.
see: http://www.trannews.com/video.htm
"The Doctor Is In is
a nationally syndicated television series on health. Its aim is to inform and
sensitize people to a wide variety of illnesses and diseases, and to support those
dealing with the challenges. The series has been on public television since 1987.
It is also sold to schools, libraries, universities and consumers.
Bone marrow is a precious body material, but it can be killed by radiation
and chemotherapy during cancer treatment. Bone marrow transplants are used to
either take out the patient's own marrow to protect it during this treatment,
or use someone else's marrow. The procedure was started for patients with leukemia,
but is now used to treat many other forms of cancer. Host Jamie Guth travels
to the Fred Hutchinson Cancer Research Center and interviews Dr. E. Donnell
Thomas, the doctor who started the procedure and won a Nobel Prize for his work.
Viewers see a woman undergoing a transplant for leukemia and hear about a teenager's
difficulties with an insurance company that refused to pay for his transplant
for a brain tumor. A woman with breast cancer is profiled at the Dartmouth-Hitchcock
Medical Center." For more information, contact:
Department of Visual Media
Dartmouth-Hitchcock Medical Center
One Medical Center Drive
Lebanon, NH 03756
(603) 643-7400 (Voice)
(603) 643-7404 (Fax)
email: Jane.P.Bassick@dartmouth.edu
"Over 6,000 Americans are waiting for a liver, heart or lung transplant. One quarter
will die before they receive one. This program examines how the organ transplant
system works, for both donors and recipients. Viewers get to follow patients through
a cornea and kidney transplant, and see how it's decided who will get what and
when. Interviewed are Dr. Horace Henriques of the Dartmouth-Hitchcock Medical
Center and Richard Luskin, Executive Director of the New England Organ Bank."
(For more information, see the Dartmouth Dept. of Visual Media,
above or "The Doctor
Is In" home page.)
Talk, Talk, Talk
"Talk, Talk, Talk" is a video produced and distributed by the Wendy Marx Foundation
for Organ Donor Awareness. It is aimed at reaching junior high school students
and their families on the issue of organ and tissue donation. The eight-minute
video features Olympic champion Carl Lewis and liver transplant recipient Wendy
Marx. "Talk, Talk, Talk" is being distributed (free of charge) nationwide through
several channels including TRIO, the National Kidney Foundation, and the American
Liver Foundation. The video will have the most impact when a transplant recipient
or donor family member is able to accompany it into a classroom.
For a copy of the tape, please contact the
Wendy Marx Foundation at 322 South Caroline SE; Suite 201; Washington, DC
20003.
Stadtlanders Pharmacy offers a 45-minute exercise video for transplant recipients.
The phone number to order this video is: 800-238-7828. See also the web page at
http://www.stadtlander.com/transplant/star-video.html.
Getting Back to Work: Rehabilitation Video for Transplant
Patients
"As you know, unemployment among transplant patients is over 83%. In the first
year of my Transplant Rehabilitation Program, over 97% of the transplant and dialysis
patients returned to work. Because I cannot reach all the people who need help,
I have developed a videotape which describes the process and answers questions
about getting back into the workplace. In the video, Voc Rehab counselors explain
how to get into the system for benefits and what tools to use to help get jobs;
patients who have been through the process or are currently going through the
process describe their experience and how the State Voc Rehab Department has worked
on their behalf.
I am a liver transplant patient; I wrote the section on rehabilitation in the
"Financing Transplantation" booklet by the UNOS Patient Affairs Committee. Interested
in the video? Write to me at 18156 NW Cambray St., Beaverton, OR 97006. The
cost is $99 each, plus $5.00 shipping." (by Dennis Rager)
Last modified:
30 October, 2003