ORGANized


Vol. 5, No. 6, June 1996 . . . A publication of the New England chapter of TRIO

Election year

In addition to having to cast a ballot for U.S. President this year, you also need to elect new officers for TRIO New England. As usual, the nominating committee has come up with an impressive slate, as the following brief bios show.

James Brown, nominee for chapter president, lives in Cumberland Foreside, Maine. Jim works in investment management and also serves as treasurer and trustee of the Maine Historical Society. A liver recipient himself, he is a patient volunteer for the Maine Medical Center. "Patients need a voice in this whole process. Each recipient should take some time to give something back," urges Jim.

Ken Lifton, nominee for vice-president, lives in Wilmington, MA. Ken is past president of the TRIO - Nation's Capital chapter. He also sits on the board of our parent group in Washington, D.C., and chairs their chapter council. His enthusiasm emphasizes his desires for all those waiting and for all transplantees. Ken had a kidney transplant 6 years ago.

Sally Johnson, nominee for secretary, lives in Lexington, MA. She is a former English teacher who has been doing extensive volunteer work in the new TRIO office. She decided it was finally time to get more involved after hearing Faith Kaplan, a donor mother, speak on behalf of donor families. "So many people just don't know how well we recipients are after transplantation. I'm always happy to tell people that it works." Sally had a liver transplant in September 1992.

John Cederstrom, nominee for treasurer, lives in Lanesboro, MA. John is looking forward to his second term as treasurer. He is enjoying retirement from 30 years as a field worker with Boy Scouts of America. John comes into the Wakefield office from western Massachusetts once a week. He is also a hospital visitor and involved with support groups in his community. John had a liver transplant three years ago.

James Tynan, nominee for assistant treasurer, is a resident of Bedford, MA. Jim is now retired, but spends many hours working for TRIO. He is active with the Speaker's Bureau and has appeared frequently as a spokesperson for the American Red Cross and New England Organ Bank. Jim had a liver transplant five years ago.

In accordance with our bylaws, the election will take place at our "annual meeting," which coincides with our July chapter meeting. Once elected, officers will serve a 2-year term. Please make a special effort to attend the July meeting to show your support of the new team. (Voting will take place at all meetings.) For members who can't attend, we have enclosed a proxy statement which gives Martin Smith or your named designee the right to cast your vote. Please sign and return the proxy to the office as soon as possible.

Scholarships available

It's only graduation time, but it won't be long before the next tuition bill is due. To help defray the cost of education, TRIO International and Ortho Biotech are both offering several $1,000 scholarships to qualified applicants.

The TRIO scholarships have become an annual tradition. They are offered to organ/tissue candidates, recipients, or donor family members who have a financial need, are enrolled in an accredited school for continuing education, and have a grade point average of 2.5 or better. Applicants must submit a statement of educational objectives and letters of recommendation, and must use the scholarship during the 1996-97 academic year. Applications will be evaluated and winners selected by the scholarship committee.

Ortho Biotech's program, entitled "Scholarships for the Future," commemorates the company's 10 years in transplantation. Ten prizes of $1,000 each will be awarded to U.S. citizens under 18 who were born after a parent received a transplant. Children must be nominated by a transplant surgeon, physician, nurse, coordinator, or administrator. Multiple nominations are acceptable Winners of the Ortho prizes will be selected by random drawing.

For more information on both programs and a copy of the appropriate forms, contact the office. Deadline for both applications is July 15, so don't dilly-dally!

Summer picnic

The Maine group is hosting a summer picnic and invites all members of TRIO New England. The picnic will be held at the home of Paul and Mona Chiarantona in Lewiston, Maine, on July 27, from 12 to 6:00 p.m. (rain date, Aug. 3).

This is a great location and a great time of year (Maine has two seasons: winter and July). We hope that members from all over the 6-state area will be able to attend and enjoy it. It will be a great opportunity to make new acquaintances and renew old ones, which is part of the fun of belonging to an organization like ours.

Bring your own food for the grill (hamburgers, hot dogs, chicken, or whatever) and one dish to share (salad, nibbles, dessert, etc.) Plates, napkins, utensils, and drinks will be provided by TRIO New England.

If you are planning to attend, please call the office at 617-224-1270 by July 20 so we'll know how many to expect. Detailed directions and a map are available. See you there (and don't forget your sunscreen).

In memoriam

We are sorry to report the recent deaths of four of our members: Francis McAree of Newton, MA, Joan Beard of York Beach, Maine, Deborah Livingston of Weymouth, MA, and Helen Hamilton of Worcester, MA.

Francis was a member of a donor family, Joan and Helen were transplant candidates, and Deborah was a transplant recipient. All were members of long-standing.

We extend our sincerest sympathy to their families and friends, who we know miss them greatly.

Member news

Milestones

This month's senior honors go to Matt MacKenzie, who celebrates his seventh transplant anniversary this month; Matt had a liver transplant at MGH when he was 11 years old. Laurence Riley (heart, B&W) and Maureen Goodwin (kidney-pancreas, Beth Israel) are celebrating sixth anniversaries. Five-year honors go to Haemi Kahan (heart, B&W) and Claire Smith (kidney, Hartford Hospital). Pat Harrington (kidney-pancreas, NEDH) hit the 4-year mark, while Carolyn Fiore (liver, Baylor University Medical Center), Brenda Hamlett (heart, B&W), Susan Leone (heart, B&W), and Joyce Nadeau (liver, NEMC) are all enjoying their third transplant anniversary. Rachel Holm (liver, MGH), Marianne McGown (liver, NEMC), Lois Ryan (liver, NEDH), and James Severance (liver, NEDH) were transplanted two years ago.

Last, but far from least, we congratulate Patricia Coulston (kidney, MMC), Phil Kissel (heart, B&W), and Brendan Woodworth (heart, Children's) on their 1-year anniversary. (Brendan was only 2 months old when he received his transplant last year.)

We wish you all a happy, healthy summer.

Organ Donor Recognition Ceremony

On June 2, the New England Organ Bank and TRIO New England co-sponsored an organ donor recognition ceremony at the Marriott Hotel in Framingham. Attended by over 400 donor family members, recipients, and recipient families, the ceremony was a tribute to the loving gift that the donor families gave at one of their saddest moments.

As a testimony to the value of their gifts, three recipients' stories were told. Brenda Butler Hamlett, who received a heart transplant, Laurie Busa, mother of a heart valve recipient, and Suzi Holmes, liver recipient, told moving stories about the impact of transplantation on their lives and the lives of those around them.

After their remarks, donor families were called to the front of the room and, while Suzi Holmes read the names of the donors, Jaime Busa and Marcia Bujan presented thank-you booklets and certificates.

On display at the ceremony were pictures of many of the donors and a section of the National Donor Family Quilt.

It was an emotional day for all who attended, but we hope is was a day of healing for donor families and that they left feeling loved and appreciated.

The organizers of this event did a wonderful job and we thank them. Plans are in the works to conduct recognition ceremonies throughout New England.

Marcia's corner

by Marcia Bujan

Spread the word

With many weeks of outdoor weather ahead, we will all have the opportunity to attend local fairs, festivals, and community awareness activities. What better chance to spread the word about organ donation. Most of these events welcome non-profit organizations as part of their festivities. TRIO can loan you a table, supply donor pamphlets and cards, TRIO information, and even posters and some freebies to hand out to the attendees. Won't you all please take this opportunity to check your local papers for news of upcoming events and then man a TRIO table there? People do enjoy hearing a transplant story and need to know how well most of us are doing after transplantation. We can even find some other recipients and/or candidates in the area to join you for a few hours.

Many people in our communities are just not sure about donation even though they have taken the cards at the Registry office. Some do not know that they must also inform their families of their decision. The new slogan is "Share your life. Share your decision."

Please offer to set up one of these tables in your community. Call us and we can help you with the plans. Spread the word!

News briefs

Upcoming events

An educational/support series is presented at 7:30 p.m. at the Lahey Clinic in Burlington, MA, on the 4th Thursday of the month and at the Maine Medical Center on the 1st Wednesday of the month.

Lahey Clinic

July 25. "Managed Health Care." Joseph Reedy, RN, Clinical Nurse Consultant for John Hancock Insurance, will discuss their national transplant program.

August 22. "Psychological Impact of Transplantation," presented by Gail Gaffey, RN, CS, Psychiatric Clinical Nurse Specialist at MGH.

Maine Medical Center

July 3. Donald Leeber, MD, Director of Nephrology and Renal Transplant at Maine Medical, will talk about the Maine kidney transplant program and the Burdick model for kidney allocation.

August 7. Bruce White, senior transplant coordinator at Maine Medical Center, will speak on organ recovery and UNOS allocation rules.

OTHER MEETINGS

In addition to the educational/ support series held at the Lahey Clinic, TRIO New England sponsors meetings at the following locations:

Massachusetts General Hospital. 12:00 noon on the second Sunday of each month in the Harris Room of the Bigelow Building (10th floor, Room 1002). PLEASE NOTE NEW MEETING ROOM. For more information, call Joe Ferreira at 617-491-0819.

Northwestern Medical Center, St. Albans, VT, July 11, 7:00 p.m. For more information, contact Nancy or Joe Bell at 802-524-7318.

OTHER EVENTS

Transplant Games, August 22-25, Salt Lake City

TRIO National Conference, September 26-28, Nashville, TN

More information

If you want more information about TRIO (Transplant Recipients International Organization), contact:
Martin Smith
TRIO New England
Lakeside Office Park
607 North Avenue, Door 14
Wakefield, MA 01880
Phone: 617-224-1270
Fax: 617-224-1929
email: BYGJ31A@prodigy.com

This text provided to TransWeb by Ruth I'Anson of TRIO. All rights reserved.
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