November 1995 -- Newsletter -- Volume 2, Number 9

TRIO -- THE NATION'S CAPITAL AREA CHAPTER Transplant Recipients International Organization

P.O. Box 7633, Arlington, VA 22207, (703) 920-TRIO

Join TRIO - Awareness, Support, Education, Advocacy

YOU ARE INVITED TO ATTEND THE CELEBRATION OF THE CHAPTER'S
THIRD CHARTERING ANNIVERSARY

Guest Speaker: Peggy Schaeffer Director of Recovery Services Washington Regional Transplant Consortium

Donor Family Members and Living Donors will be Honored

Saturday, November 11, 1995
6:30 p.m. Reception - 7:30 p.m. Dinner

Patton Room - Tower Building - Best Western Arlington $22.00 / person

Please complete the reservation form enclosed and return to Nancy Brady
.


SUNDAY, DECEMBER 10, 1995
Fifth Annual Holiday Party
2:00 p.m. - 5:00 p.m.
at the home of
Chick and Hetty Abeles
4531 Dexter Street, NW
Washington, DC 20007
Bring a Covered Dish to Share. RSVP to: Nancy Brady 703-534-7029 or 202-775-3193
.


Message from the President by Chick Abeles

I must report with regret that Gerry Cole has submitted his resignation as president of The Nation's Capital Area Chapter. In his letter of resignation, Gerry noted that as a result of personal and family medical problems, he will be unable to devote the needed time and energy to Chapter matters. The good news is that Gerry will remain an active member of the Chapter and will continue to contribute his time and talents where possible. We look forward to his continuing good counsel.

The Operating Committee has asked me, as First Vice President, to step in for Gerry for the balance of his term. I feel fortunate to have the good health and time to undertake this task, and will do my best. One of our early tasks will be to seek greater participation in Chapter committees and activities. With a paid membership close to 250, we hope to identify a good number of people who are willing to undertake various tasks on behalf of the Chapter. To commence this process, we are planning to circulate a questionnaire to the membership (perhaps with the next dues notice) describing Chapter activities and seeking volunteers. This is one easy and pleasant way that transplant recipients can start giving back to the community. So please be generous when asked.

This will serve as a reminder that the United Way Campaign is still underway. If you would like your contribution to go in whole or in part to the Chapter, you can designate it as a recipient on your pledge card. Specific directions can be found elsewhere in this newsletter. I look forward to seeing many of you at the Chartering Anniversary Celebration on November 11th.


TRIO - The Nation's Capital Area Chapter
Chapter 20 -- Chartered November 16, 1992


Operating Committee
Chairman: Claude Brady


Officers
President: Chick Abeles
Vice President: Debbie Hawkins
Treasurer: Linda Cheatham
Secretary: Nancy Brady
Past President: Gerry Cole


Committee Chairpersons
Awareness: Debbie Hawkins
Fundraising: A.Leon/B.Duykers
Legislation: Vacant
Membership: N.Brady/J.Leon
Newsletter: L. Steed (Acting)
Meetings: Vacant
Support: Vacant


At Large Members
Brian Hartford
Jim Dueppen
Sandra Tirnauer
Kim Brown
Michael Garrett
Ken Lifton
Louis Miner
Christine Wilson
Kenneth Moritsugu,M.D.,M.P.H.

If you want to contact any Chapter Officer or Committee Chairperson and don't have their number, call 703-920-8746 and leave a message; your call will be promptly returned.


GET INVOLVED!

The Newsletter is an official publication of TRIO - The Nation's Capital Area Chapter published monthly to provide members with notices of upcoming Chapter meetings, activities, minutes of Chapter meetings, TRIO news, and any late breaking news. Articles and letters are welcomed and should be sent to TRIO - The Nation's Capital Area Chapter, P. O. Box 7633, Arlington, VA 22207. Attention: Newsletter Editor.


WELCOME NEW MEMBERS

From June through September, the following became members of our Chapter: Eric and Elaine Petersen, Mr. and Mrs. Oliver Lancaster, Sandra Tirnauer, Richard Dasher, Patricia Silver, Man Soon Ranieri, Jeannette DeKraft, Sharon and Paul Roxin, Edward and Joenne O'Connell, Donna Marie Moshier, Larry Slagle, Mary Weaver, George and Edna Hicks, Sheila Cabiness, Mary Jo Burke, Michael and Sandra Anderson, and the Durbin family: Jill who received a kidney from her sister Carrie, and parents Nancy and John. We look forward to seeing all of you at our meetings and activities.


CHAPTER GRANT PROGRAM

-- To ensure that all recipients, and those waiting for transplants, can participate in our local TRIO activities, we have established a GRANT PROGRAM. A certain number of chapter members will be admitted to our paying events without cost. No one shall be prohibited from participating in TRIO because of lack of funds. The Grant Program applies to dues, registration for the annual UNOS/DOT Conference, annual TRIO Conference, annual Chartering Anniversary Dinner, and other activities with a fee. This program has NO PAPERWORK! If you would like to become a member, or attend a TRIO event and do not have the funds, please call Linda Cheatham (703-698-0083). That's all there is to it. While our chapter funds are limited, we encourage the participation of all our members.


Reston Lion's Club Meeting by Jim Dueppen

As a member of the WRTC speaker's bureau, and a member of the operating committee of The Nation's Capital Area Chapter, I accompanied Steve Korb, one of WRTC's organ procurement specialists, to speak at a Reston Lion's Club meeting August 16th.

Each Lion's Club determines the activities they will participate in. Every member is encouraged to bring suggestions to the group. They are looking for suggestions for activities to be of service to the community, as well as social situations.

The members had the usual questions showing considerable interest in transplantation issues. In particular, there were questions about Mickey Mantle's transplant. I explained that we have several "Mickey Mantles" in the Washington area, they just didn't have a famous name to attract the attention of the news media. I mentioned that I had never spoken to a group of people where everyone already is a registered donor. Their curiosity aroused, I asked them to consider "upgrading" their eye bank donation to include all organs and tissue.

At the end of the evening I learned that this Club has one member who is a kidney recipient; we did not meet as he was not at this meeting. I think that we may have answered many questions that they may have been hesitant to ask a fellow member.

Another plus was learning where this untried Oriental Restaurant is located. Reston has grown so much during the past few years, even those of us who live here don't know where everything is located. I enjoyed the evening and I am looking forward to continuing to spread the word of the tremendous need for organ and tissue donors.


TRIO Tribute Cards

Tribute Cards from Cherry Whitney: In Memory of Emelia Mihm; In Memory of Mrs. Tony Hill; and, In Memory of Mrs. Roudebush. Jerry and Pat Lebowitz purchased packet of cards. Tribute Card from Dora and Brian Hartford: In Memory of Lois Williams. If you want to purchase cards, or have cards sent to someone, call Jane Leon: 301-299-6748.


An Organ Donor Family - Transplant Recipient Meeting by Jim Dueppen

One of the happiest days of my life occurred on Friday, July 21, 1995. I met my donor's sister. Lonnie is the person who enabled me and three others to receive our gifts of life. She signed the papers allowing the transplant of her youngest brother Scott's organs. Jim Caswell (heart), Mark Neusel (pancreas and kidney), Wayne Knaus (kidney), and I (liver), received our organs at the University of Wisconsin Hospital in Madison in November (Thanksgiving) 1993. Jim Caswell and I probably would not have made it to see 1994. Mark has subsequently had several eye operations to restore his sight that was damaged by diabetes to a "correctable" level. We are all now, thankfully, enjoying life.

When Lonnie called that she was ready to meet us, my wife, Marilyn, and I made reservations for the first weekend that we could, and flew to Austin, Texas. I knew that someday I would have my prayer answered, and I would be able to put my arms around her and give her a big hug, and say "Thanks." I knew that I just had to do that. I'm very happy that she wanted and needed that big hug too.

We learned that our donor died from a self-inflicted injury that caused oxygen deprivation. When Lonnie got to his side 20-plus hours later, he grasped her hand. After awhile, he appeared to be slipping away. She went outside and a man walked up to her and asked if she had considered donating her brother's organs? She said that she had not. He said that he had donated his three-year old daughter's organs about a year before and this really helped the family in their healing process. Then he seemed to just disappear. She never saw him again. She wonders, was he an Angel? Then she sat down next to a young woman and learned that she was awaiting a liver transplant.

When Lonnie went back to the ICU, she told the doctor that she wanted to donate Scott's organs if he didn't make it. The doctor told her that she couldn't, as the coroner would have to perform an autopsy. She then told the doctor that she insisted that Scott be an organ donor and to tell the coroner that he could just come to the hospital to do his autopsy while Scott's organs were being harvested. She really had to fight for us, arguing for over an hour, not knowing who we were, other than some people awaiting a chance to survive. The coroner evidently came to the hospital, because we four are living proof of what a very determined lady can do when she sets her mind to it.

So, a beautiful lady named Lonnie is my hero. She is a young grandmother who has led a difficult life and has a very deep faith in God. Scott and the rest of the family have had more than their fair share of problems and difficulties, and a few miracles too. While Scott may not have left much of a mark during his short 40-year life, he sure has left a mark with the donation of his organs at his death. He has enriched at least four families who are eternally grateful.

Lonnie recently received a large medal from the Governor of Wisconsin for the family, thanking them for their multi-organ donation. It is like an Olympic "Gold" Medal. We think that it is appropriate. They certainly are our heroes.

We are planning to get together next June in Wisconsin Dells--Lonnie, her four children and their families, her brother Bill and family, and we four recipients. For all of us, this will be a real family reunion.


REMINDER

The United Way Campaign is still underway -- even though our chapter is not a listed organization, you can designate your contribution to go to:

TRIO - The Nation's Capital Area Chapter, P. O. Box 7633, Arlington, VA 22207


TRIO Baltimore Meeting

November 28, 1995 -- 6:30 p.m.
Columbia Mall Conference Room
Speaker: Dennis Rager
President, Rager Employment Consulting

Mr. Rager is a 1986 liver recipient who discovered that returning to the workplace after a long-term, serious illness was not as easy as one might expect. He utilized the state vocational rehabilitation to assist in re-training him in personnel management, a vocation better suited to his physical capabilities post transplant. Since that time, he has devoted his life to helping others who have had serious illnesses, disabilities, or displacement from the workplace get back to work. He is a certified rehabilitation counselor and consults with transplant centers, vocational counselors, and patients nationwide. All invited to attend. For more information call: Pat Lebowitz -- 410-539-1582.


MAKING THE MOST OF YOUR LIFE


Issues for Today's Transplant Recipients
A National Town Meeting Live from
New York City
Saturday, November 18, 1995
1:00 pm - 3:00 PM EST


Topics to Include:


New Beginnings: Personal and Professional


Medications: New Drug Therapies, Medical Advances & Coping Strategies


Sexuality: It's Still Part of Your Life


Breakthrough Financial Strategies: Planning Ahead & Cutting the Red Tape

This live meeting will be beamed by satellite to a number of cities throughout the country, including Washington, D.C. It will be held at the Cancer Center Auditorium of the Washington Hospital Center commencing at 1:00 p.m. Local sponsors of the event are the National Kidney Foundation, the Washington Hospital Center, The Nation's Capital Area Chapter of TRIO and Washington Regional Transplant Consortium.

Those interested in attending should register by telephone with Alyson Reed at NKF - 202-244-7900. Please note that while Washington will receive the program live, we will not be able to converse with other participants. National sponsors of the event are NKF, the North American Transplant Coordinators, and Sandoz Pharmaceuticals.

Other cities participating are: Ann Arbor, MI; Atlanta, GA; Chicago, IL; Dallas, TX; Los Angeles, CA; Salt Lake City, UT; and San Francisco, CA. For more details on locations at these cities contact the National Kidney Foundation at 1-800-622-9010.


LUNCH BUNCH

The next meeting of the Lunch Bunch is scheduled for Wednesday, November 15, at 12:00 noon at the usual place: The Sizzler Restaurant, North Glebe Road and Lee Highway. For more information, call Claude Brady: 703-534-7029.


Congratulations to all TRIO members and friends who celebrate their transplant anniversaries in November.


James Collins, heart, Johns Hopkins Hospital, 1991
Danielle Mills, kidney, Washington Hospital Center, 1994
Joe Conway, kidney, Washington Hospital Center, 1991
Brian Sullivan, liver, Johns Hopkins Hospital, 1994
Clarence Hill, kidney, Washington Hospital Center, 1988
Charles C. Abeles, kidney, Washington Hospital Center, 1990
Sharon Roxin, liver, Thomas Jefferson Univ. Hospital, Philadelphia, 1985
Earthia Dorsey, heart, Georgetown University Hospital, 1991
Deborah Hadden, kidney/pancreas, Georgetown University Hospital, 1993
Sandra Tirnauer, single lung, Presbyterian Hospital, Pittsburgh, 1993
Delores Brown, heart, Georgetown University Hospital, 1991
Daniel Butler, liver, Univ. of Colorado Medical Center, 1974
Kathleen Fisher, kidney, Washington Hospital Center, 1991
Gloria Brooks, liver, Howard University, 1992
Vertener Davis, kidney/pancreas, Washington Hospital Center, 1991
Eugene D'Souza, kidney, Georgetown University Hospital, 1987
James Dueppen, liver, University of Wisconsin, Madison, 1993
Paul Shannon, kidney, Georgetown University Hospital, 1981
Lance Freudiger, liver, Fairfax Hospital, 1993
Kenneth Warner, kidney, Washington Hospital Center, 1989

If we missed your anniversary or to be sure we have your anniversary, please contact Claude Brady at 703-534-7029.


The Nation's Capital Area Chapter
Transplant Recipients International Organization
P.O. Box 7633, Arlington, VA 22207
(703) 920-TRIO


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