March 1996
Volume 3, Number 3


THE NATION'S CAPITAL AREA CHAPTER
Transplant Recipients International Organization
P.O. Box 7633, Arlington, VA 22207, (703) 920-TRIO


Join TRIO - Awareness, Support, Education, Advocacy

MARCH GENERAL MEETING

SPEAKER: Rick Kolovich, Senior Transplant Coordinator TOPIC: Kidney Transplant Program

WHEN: TUESDAY, MARCH 26, 1996 -- 7:30 p.m.
WHERE: Shady Grove Adventist Hospital Weinschell
Conference Center, Oak Room
9901 Medical Center Drive, Rockville, MD

DIRECTIONS: From 270 North, off 495, get off at Exit #8 -- Shady Grove Rd. Go West about 2 miles. Hospital is on the right. Go past the fountain to the Outpatient Surgery Parking Lot


IMPORTANT APRIL EVENTS

SUNDAY, APRIL 14, 1996
National Donor Family Recognition Ceremony
National Institutes of Health Bethesda, MD
[See below for Details]

APRIL 21-27, 1996
National Organ and Tissue Donor Awareness Week (NOTDAW)

SUNDAY, APRIL 28, 1996
WRTC Donor Family Gathering
National Presbyterian Church
4101 Nebraska Ave., NW, Washington, DC
(Call WRTC at 703-641-0100 for details.)

KIM BROWN CHOSEN TO
CARRY OLYMPIC TORCH

On June 20-21, 1996, Kim Brown, a local kidney transplant recipient, will carry the Olympic Torch through Washington, D.C. She will be one of 5,500 Community Hero Torchbearers in the 1996 Olympic Torch Relay. The National Kidney Foundation of the National Capital Area nominated her as a torchbearer. Community Hero Torchbearers are selected based on: outstanding volunteer work; community leadership; acts of kindness and extraordinary accomplishments. Kim was a gold medalist in the skiing event at the 1995 U.S. Winter Transplant Games in Aspen, CO -- only three months after her third kidney transplant. She is the Membership Services Coordinator for TRIO and serves on the Board of the Transplant Foundation. Congratulations Kim!!!!!


Join Us in Paying Tribute to the People Who Saved Our Lives -- America's Donor

What: A National Donor Recognition Ceremony - Sponsored by the Division of Transplantation (HRSA) and several transplant-related national associations

When: April 14, 1996

Where: The Natcher Conference Center, National Institutes of Health, Bethesda, MD

Time: 1:00 - 2:30 p.m., Reception following


The third annual National Donor Recognition Ceremony will be held on April 14, 1996, to honor America's organ and tissue donors. Each of us who is a recipient, or a family member of a recipient, is keenly aware of how precious life is. We are reminded every day that we owe our lives and the quality of our lives to the generosity of a donor and his/her family members. Please join us in giving thanks to those special people who made it possible for a growing number of recipients to have a growing number of tomorrows.

Sponsored by their local procurement organizations, donor families will travel to the Washington, D.C. area from around the country to participate in this program honoring and remembering loved ones. It is especially important for recipients and our families to attend this program to demonstrate our support for and personally express our appreciation to participating donor family members who are attending as representatives of all donor families throughout the Nation.

Last year more than 40 organ procurement organizations sponsored families to participate in the ceremony. Among them were the Nicholas Green family whose son's organs were donated in Italy after he was fatally wounded by a gunshot, and Mr. Chester Szuber who received his daughter's heart. As in years past, TRIO of The Nation's Capital Area Chapter will present donor family members with a rosebud bouquet, and the Central Pennsylvania Coalition on Donation will give each family a medal honoring their donors.

The presence of recipients and our families is a vitally important element of the program. We hope to see you there. There is no fee to attend the Ceremony, however, you must be registered with the National Donor Family Council which is handling registration for this program. To obtain a registration form, call or write to Ms. Kathleen Casey at: National Donor Family Council/NKF, 30 East 33rd Street, New York, NY 10016, phone: 212-889-2210 fax: 212-779-0068

Rooms at two Washington area hotels have been reserved at special rates for participants in this ceremony.

The Renaissance Mayflower Hotel
1127 Connecticut Avenue, NW
Washington, D.C. 20036
phone: 202-347-3000
Group rate of $139 for single/double

The Lincoln Suites
1823 L Street, NW
Washington, D.C. 20036
phone: 202-223-4320
Group rate of $99 for single/double/triple/quad

Identify yourself as being part of the National Donor Recognition Ceremony. Rates are good until March 22.

The 1996 National Donor Recognition Ceremony promises to be a very special and memorable event. We hope many TRIO members will attend. Mark your calendars now!


February General Meeting Update
by Al Leon

The February General Meeting, presided over by Linda Cheatham, featured a transplant recipients panel. The meeting was attended by more than 35 recipients, candidates, and support participants. The panel consisted of Brian Rothermel (heart), Christine Wilson (kidney/pancreas), Sandy Tirnauer (double lung), Jim Dueppen (liver) and Daryl Hollis (kidney) with Al Leon (heart) as moderator.

The large turnout was gratifying and all the exceptional panel members told their transplant stories with warmth, humor and compassion. The candidates in the audience asked many questions and it is felt that the entire evening was a most worthwhile experience. Because of the popularity of the program, it is recommended that such a program be on our calendar at least once a year.


THIRD ANNUAL UNOS MEMBERS
FORUM/DIVISION OF TRANSPLANTATION 1996 MEETING
by Al Leon

On February 21-23 meetings were held at the Grand Hyatt Hotel in Washington, DC. The first day of the meeting was dedicated to UNOS matters, covering such subjects as: patient selection in transplantation; distribution of transplantable organs; and, academic medical center. Another session embraced: scientific advances in xenotransplantation; ethics of patient and donor selection/allocation; power of positive patients; public education; and, organ allocation modeling

The last two days were devoted to DOT matters covering such material as: the legality of donor cards; media coverage; celebrity transplants; coalition (COD) update; DOT legislative program; issues in consent; and cultural and class barriers.

Attendance and interest were high and there was always spirited interchange between audience and presenters.


FAIRFAX HOSPITAL
ANNOUNCED NEW TRANSPLANT PHYSICIAN

Dr. Tim Shaver became the Director of Abdominal Transplantation at Fairfax Hospital in December. The Fairfax Transplant Center has scheduled a pot luck dinner on March 14th at 7:30 pm. You are invited to attend -- bring a pot luck dish to share. This is a chance for patients to meet other patients, spouses and transplant members to share concerns and joys. For more information call Adele Denny (703-698-2619) or Jane Harrison (703-698-3203).


TRIO TRIBUTE CARDS

From: Mary Lamm to Bette Perrini in memory of her husband, Victor; Cherry Whitney in honor of Jane Winston for donating her kidney to Cherry; Cherry & Jeannette Whitney in memory of Rush Williams; Sharon Roxin, Virginia and Charles Johnson and Richard McCann for packets of cards; and Jim and Marilyn Dueppen, Earthia Dorsey, H.O.S.T.L. Support Group (Christine Wilson, Clarence Hill and Debbie Hawkins), Ed Linz and Jane and Al Leon wishing Nancy Brady a speedy recovery. If you are interested in sending a tribute card or purchasing a packet of cards, call Jane Leon at 301-299-6748.


LUNCH BUNCH

The next meeting of the Lunch Bunch is scheduled for Wednesday, March 20, at 12:00 noon at the usual place: The Sizzler Restaurant, North Glebe Road and Lee Highway. For more information, call Claude Brady: 703-534-7029.


Congratulations to all TRIO members/friends who celebrate transplant anniversaries in February/March

Joan Dasher, lung, Fairfax, Hospital, 1994
Philip Edmondson, liver, Presbyterian University Hospital, Pittsburgh, 1989
Zachery Hasley, heart, Children's Hospital, 1993
A. Joe Dobson, heart, Georgetown University Hospital, 1989
Lee Deike, heart, Fairfax Hospital, 1993
Les Lamm, kidney, Washington Hospital Center, 1991
Tony Benedi, liver, Fairfax Hospital, 1993
Alfredo Gurmandi, kidney, Washington Hospital Center, 1993
Florence Rollwagen, liver, Pittsburgh, 1989
Sandy Gilford, kidney, St. Christopher Children's Hospital, Philadelphia, 1972
Tom Fereday, double lung, Pittsburgh, 1992
Warren Huntress, liver, Baylor Medical Center, 1990
Michael Prince, kidney, Washington Hospital Center, 1991
Gloria Marshall, heart, Fairfax Hospital, 1988
Toleka Brooks, heart, Children's Hospital, 1994
Debbie Haegele, kidney/pancreas, Fairfax Hospital, 1994
Virginia Sullivan, heart, John Hopkins University Hospital, 1992
David Garland, heart, Fairfax Hospital, 1994
Donna Anderson, heart, John Hopkins University Hospital, 1987
Debbie Hawkins, kidney, Washington Hospital Center, 1990
Albert Leon, heart, Presbyterian University Hospital, Pittsburgh, 1987
Diane Murtha, liver, University of Alabama, 1995
Patricia M. Agboli, kidney, Washington Hospital Center, 1992
Judith Whitesel, kidney, Georgetown University Hospital, 1986
Deb Tessier, kidney/pancreas, 1994

If we missed your anniversary , please contact Claude Brady at 703-534-7029.


The Nation's Capital Area Chapter
Transplant Recipients International Organization
P.O. Box 7633,
Arlington, VA 22207
(703) 920-TRIO


This newsletter posted on TransWeb by permission of Lora Steed of TRIO. Many thanks to Lora for formatting this page in HTML!
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